I set up a page at carepages.com for Jude. I'll probably keep it more updated than this throughout the surgery and hospital stay. You do have to join carepages in order to view the page.
For awareness and more info on craniosynostosis, you can visit the following sites.
http://www.cappskids.org/ - The Craniosynostosis and Positional Plagiocephaly Support Inc. strives to spread awareness, educate and offer support and guidance to families affected by craniosynostosis and/or positional plagiocephaly.
http://craniokids.org/ - provides awareness and support forums, founded by a mother and father after researching craniosynostosis and being disappointed in the lack of personal support and connections they found.
http://www.jorgeposadafoundation.org/ - founded by Jorge Posada after his son was diagnosed with craniosynostosis, the Jorge Posada foundation is a non-profit organization that creates awareness of craniosynostosis and provide support of families going through this journey.
Thank you all for the support!
http://www.cappskids.org/ - The Craniosynostosis and Positional Plagiocephaly Support Inc. strives to spread awareness, educate and offer support and guidance to families affected by craniosynostosis and/or positional plagiocephaly.
http://craniokids.org/ - provides awareness and support forums, founded by a mother and father after researching craniosynostosis and being disappointed in the lack of personal support and connections they found.
http://www.jorgeposadafoundation.org/ - founded by Jorge Posada after his son was diagnosed with craniosynostosis, the Jorge Posada foundation is a non-profit organization that creates awareness of craniosynostosis and provide support of families going through this journey.
Thank you all for the support!
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